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hope for a last try?

IVF miscarriage ICSI AH

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#1 lilyofthevalley

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Posted 14 January 2016 - 06:49 PM

Hello all, 

 

I'm looking for a pep talk and some hope, please. My husband and I have been trying for 5 years with multiple IUIs, 3 IVF, 1 FET, one miscarriage. This next round is our last chance as we are out of $$$. We have unexplained infertility, I'm 37. 

 

IVF 1 - cancelled due to clinical error

IVF 2 - 14 eggs collected, 2 fert, one transferred, one frozen.

FET - 1 transferred - it worked! miscarried at 6 weeks.

IVF (ICSI) 3 - 5 eggs collected, 4 fert, 2 embryos transferred, none to freeze.

 

This round we are pulling out all the stops! I'm having a hysteroscopy to see if all looks good inside, and then our doc ordered a bunch of further blood tests for "multiple miscarriages" to see if one of those factors may explain the lack of getting preg also. If all tests are good, we will do a final IVF round with steroids, ICSI, AH, and increased meds! I'm hopeful that these tests will find a fixable problem instead of being trapped in "unexplained" land. I'm hopeful because medically at least, we are not at the end of options.... But I'm also terrified that this last round will not work, then it will all be over. And each long-protocol round of IVF gets harder and harder physically and emotionally - and I really don't know how I'm going to get through this all again. 

 

Any support or encouragement would be very appreciated. This journey has been so long, and so hard. I want to go into this final round ready to fight but I can barely scrape myself off the ground these days.

 

Thank you.



#2 dsomerv

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Posted 14 January 2016 - 07:30 PM

Hello, and welcome!!!!!  

 

Sounds like you are covering all your tracks this next transfer and for good reason.  It is understandable why you would be terrified.  And it's good to hear your doctor is doing everything he/she can to ensure this works.  We recently went through a second frozen 5 day transfer that resulted in an early miscarriage at 5 weeks.  This was our second transfer and miscarriage.  We have one more 5 day frozen blast left so I can totally relate to feeling anxious especially when it's your last chance.  A part of me doesn't want to try again out of fear it won't work, but I know I have to keep going and not give up. 

 

Just know that you ARE strong and can get through this.  I never realized this about myself until I started with the IVF process.  Every time I get knocked down, it stings, but I get back up and fight and fight that much harder. It's amazing how much strength one has when they are determined.  Wishing you all the best, please keep me posted on your journey!!!!  Sending you lots of hugs!!!!!


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#3 amazing grace

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Posted 15 January 2016 - 11:03 AM

I wish you all the success in the world. I know it can be difficult to move forward and be positive when things go wrong. I am in your shoes too but keep positive, surround yourself with happy people and know that you are doing all you can. 

Good luck!


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#4 gibasgirl

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Posted 15 January 2016 - 11:12 AM

I wish you all the success in the world. I know it can be difficult to move forward and be positive when things go wrong. I am in your shoes too but keep positive, surround yourself with happy people and know that you are doing all you can. 

Good luck!

 

 

Beautiful post.

 

All the best to you, too, AG. 

 

FX!



#5 amazing grace

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Posted 15 January 2016 - 01:11 PM

Thank You, xoxo


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#6 From0to3

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Posted 16 January 2016 - 01:49 PM

Good morning. Felt compelled to respond as am in a pretty good position to give you some hope and positive encouragement. I too have unexplained infertility which is a crazily frustrating diagnosis as there is no logical reason not to be able to carry a pregnancy and no one seems able to provide answers. After 2 years trying and an unsuccesful iui i moved to ivf quickly not wanting to waste time or money with dismal iui odds. My first ivf cycle was textbook - 17 eggs - 8 fertilized - 2 transferred - 2 frozen. My RE and the nurses kept reiterating how beautiful and 'perfect' the embryos were and that 'they would bet money on them.' Perhaps too much encouragement as the BFN stung that much more. Transferred the two frozen and after that much awaited BFP - lost the baby at 9 weeks even after seeing the heartbeat. My second round of ivf did not produce the same textbook results. I had two dominant follicles they were worried about and I only produced a measly 6 eggs. I was devesrated. Crazily enough all 6 fertilized and 5 made it to day 5 embryos. I transferred 2 and now have 2 year old boy-girl twins. I transferred 1 more a few months ago and incredibly it took too and am in my second trimester with my third baby from that cycle. I don't want to sound too hocus pocusy but my second cycle I combined some Chinese and western philosophies for fertility. For three months I took baby aspirin, royal jelly, coq10, omega 3 and my prenatal and my Chinese fertility specialist acupuncturist told me I needed to warm up my system by eating more warm food and drinks as I would gravitate to cold food and rarely had a warm breakfast or lunch. I believe this really helped but of course I have no proof. Crazily I still have 2 more embryos. I want you to know not to give up and what may seem like a dismal cycle could be the one that provides the family you deserve! I really felt it was hopeless as well and know it's hard to kerp believing after so much dissapointment and physical toll but never say never.
  • Ola1981, lilyofthevalley, Womb Occupied and 1 other like this

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#7 lilyofthevalley

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Posted 16 January 2016 - 02:03 PM

Thank you all so much. Your stories truly make me feel supported and you give me real hope! 

 

dsomerv, I'm sorry you have had such heartbreak too. Let's give it our best try on this last go round!!! You are right, I have realized how strong I am going through all this crud. When I feel low I will read your message and it will boost me back into fighting mode. Please keep me posted on your journey too. Sending lots of love.

 

amazing grace, thank you for your support. Reaching out to this community is the best thing for surrounding myself with good vibes and strength. Thank you being part of that. 

 

Just Hatched, your story really DOES give me so much hope! Thank you for sharing. So amazing!!! Thanks for your advice on supplements and eating warm too, I'll go the same route :) Wow. I really hope this cycle is the unexpected family-maker round. 

 

I work from home and don't have much in the way of good friends where we just moved to, so all of your support and kind words is very important to me and means so very much. Thank you all again for taking the time to support me. 



#8 From0to3

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Posted 16 January 2016 - 02:19 PM

Keep us posted Lilyofthevalley and sending so much positivity your way! You are likely not in Vancouver but on the off chance - Jenny Zhang is truly a godsend for any women fighting infertility. Her English isn't the best but she was an MD in China specializing in fertility and seeing her is like a warm hug from a favorite grandmother - best fertility acupuncturist out there and not does not work with the clinics as acupuncture can also start to feel like big business when they are directly related. Please don't hesitate to reach out if you have any questions or concerns this time through.
  • lilyofthevalley likes this

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#9 lilyofthevalley

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Posted 17 January 2016 - 11:35 AM

I'm in Montreal but I think I'll ask around and see if I can't find a different acupuncturist - the one I've been working with does NOT inspire me!  Did you talk to your RE about your supplements or did you just go for it? I'm wondering how much coq10 to take? 



#10 ilovemydogs

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Posted 17 January 2016 - 02:34 PM

I don't have any inspirational stories of hope for you, but I did want to stop by and say I feel for you. We are also down to our last try because of financial issues. I've had one IUI, 3 fresh IVF cycles (one with PGS), 2 FET and one donor egg cycle with only one blast left over after the failed fresh cycle. All BFN except one m/c. It doesn't seem fair that money forces us to stop when there are still things we could try.

As for coq10, I would suggest the ubiquinol form. Here is an old thread that provides some details:

https://ivf.ca/forums...6-coenzyme-q10/

All the best and keep us posted!
Finally seeing the light at the end of the tunnel.

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#11 From0to3

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Posted 19 January 2016 - 01:22 AM

My RE wasn't particularly helpful in discussing supplements - my suggestions were always met with ' it couldn't hurt.' Let's be honest - these clinics are big business - they want you to commit to ivf and aren't really interested in discussing anything else. In vancouver the fertility acupuncturists are directly connected to the fertlity clinics and also come off like big business. I'm sure there is a genuine Chinese acupuncturist in Montreal who specializes in fertility. For coq10 I just took the crappy drugstore brand but I'm sure there are better kinds to be found! Will keep my fingers crossed for that successful cycle! : )

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#12 mouse

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Posted 19 January 2016 - 09:52 AM

Not for nothing, but in my experience, supplements and alternative therapies aren't provided altruistically either.


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#13 Womb Occupied

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Posted 19 January 2016 - 11:34 AM

Good morning. Felt compelled to respond as am in a pretty good position to give you some hope and positive encouragement. I too have unexplained infertility which is a crazily frustrating diagnosis as there is no logical reason not to be able to carry a pregnancy and no one seems able to provide answers. After 2 years trying and an unsuccesful iui i moved to ivf quickly not wanting to waste time or money with dismal iui odds. My first ivf cycle was textbook - 17 eggs - 8 fertilized - 2 transferred - 2 frozen. My RE and the nurses kept reiterating how beautiful and 'perfect' the embryos were and that 'they would bet money on them.' Perhaps too much encouragement as the BFN stung that much more. Transferred the two frozen and after that much awaited BFP - lost the baby at 9 weeks even after seeing the heartbeat. My second round of ivf did not produce the same textbook results. I had two dominant follicles they were worried about and I only produced a measly 6 eggs. I was devesrated. Crazily enough all 6 fertilized and 5 made it to day 5 embryos. I transferred 2 and now have 2 year old boy-girl twins. I transferred 1 more a few months ago and incredibly it took too and am in my second trimester with my third baby from that cycle. I don't want to sound too hocus pocusy but my second cycle I combined some Chinese and western philosophies for fertility. For three months I took baby aspirin, royal jelly, coq10, omega 3 and my prenatal and my Chinese fertility specialist acupuncturist told me I needed to warm up my system by eating more warm food and drinks as I would gravitate to cold food and rarely had a warm breakfast or lunch. I believe this really helped but of course I have no proof. Crazily I still have 2 more embryos. I want you to know not to give up and what may seem like a dismal cycle could be the one that provides the family you deserve! I really felt it was hopeless as well and know it's hard to kerp believing after so much dissapointment and physical toll but never say never.

 

From 0to3,

Thanks for sharing.  Stories like yours give me so much hope, as we are very soon to embark on our first round of IVF (after 3 IUIs: 2 chemical, 1 bfn). I hope your pregnancy is textbook!


  • lilyofthevalley likes this

33yo, dh 36yo
Unexplained diagnosis, though LPD, DOR and sub-optimal motility likely factors
TTC 3+ years, 1 clomid, 2 tamoxifen cycles in 2014, 3 IUI cycles in 2015 with 2 chemical pregnancies & 1 bfn
 
Got the call for OHIP covered cycle mid January 2016
Microdose Flare protocol - BCP started 01/26, injections as of 02/18
03/02 13 eggs retrieved (9 mature, 5 fertilized)
03/07 B3grade2 transferred, none to freeze
03/18 beta: 435  th_abfp.gif
03/21 beta repeat: 2146, progesterone >127
04/05 1 beautiful little embryo, measuring 7w1d, 133bpm 

 

xCODm4.png

 


#14 lilyofthevalley

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Posted 19 January 2016 - 03:22 PM

Yeah, my nurses line was rude - when asked about more supplements they responded " Did your doc prescribe any?", I said, "Well, no, but I was just curious.." I got cut off.The nurse replied, "Then if your doc didn't prescribe any, you don't need to take anything else." So rude! I'll go get coq10 tonight :)



#15 ilovemydogs

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Posted 19 January 2016 - 04:56 PM

My first couple of REs were against supplements. My third one just assumed I was taking them since I was an infertility veteran at that point. I wish more of them would be open to them - as long as they don't hurt and may help the only risk is the cost.
  • lumnay likes this
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#16 From0to3

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Posted 21 January 2016 - 07:28 PM

Womb Available - great to hear my story gives some hope. It can be such a draining, lonely journey and the only people who truly understand are the women who have been through it themselves. Good luck with your first cycle! Lily of the Valley - it's almost gross how much money clinics and affiliates make during this long struggle. For example - before my frozen cycle my clinic switched from msp covered prometrium to horrifically expensive crinone. I questioned why I couldn't just use prometrium as I had had success with it before. They really didn't like to be questioned and told me they had switched the formula and it showed lower pregnancy rates. As this was for support I responded ' but I'm already pregnant.' Their irritation was evident. My gp is a bit of a rogue and looked into it on my behalf and low and behold there is no widely accepted medical evidence that crinone is more effective than prometrium. I am pretty darn certain that the clinics are enjoying a pretty kickback from the drug company for marketing crinone exclusively. This is why these forums are so helpful and supportive for shared experiences. So many positive thoughts for you ladies!
  • Highest hopes likes this

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#17 Highest hopes

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Posted 06 February 2016 - 01:39 AM

All the best Lily. I can completely relate about wanting to be as prepared as possible but also barely scraping yourself off the ground - well put - I feel the EXACT same way.

Looks like we go to the same clinic. Sorry they weren't more supportive about supplements :(
But glad they're giving you extra tests.
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#18 MichalekTereza1976

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Posted 08 February 2016 - 04:38 AM

Hello all, 

 

I'm looking for a pep talk and some hope, please. My husband and I have been trying for 5 years with multiple IUIs, 3 IVF, 1 FET, one miscarriage. This next round is our last chance as we are out of $$$. We have unexplained infertility, I'm 37. 

 

IVF 1 - cancelled due to clinical error

IVF 2 - 14 eggs collected, 2 fert, one transferred, one frozen.

FET - 1 transferred - it worked! miscarried at 6 weeks.

IVF (ICSI) 3 - 5 eggs collected, 4 fert, 2 embryos transferred, none to freeze.

 

This round we are pulling out all the stops! I'm having a hysteroscopy to see if all looks good inside, and then our doc ordered a bunch of further blood tests for "multiple miscarriages" to see if one of those factors may explain the lack of getting preg also. If all tests are good, we will do a final IVF round with steroids, ICSI, AH, and increased meds! I'm hopeful that these tests will find a fixable problem instead of being trapped in "unexplained" land. I'm hopeful because medically at least, we are not at the end of options.... But I'm also terrified that this last round will not work, then it will all be over. And each long-protocol round of IVF gets harder and harder physically and emotionally - and I really don't know how I'm going to get through this all again. 

 

Any support or encouragement would be very appreciated. This journey has been so long, and so hard. I want to go into this final round ready to fight but I can barely scrape myself off the ground these days.

 

Thank you.

 

 

Hello dear, I'm so sorry to hear about what you been through.

You are not alone there are so many women going though similar problems. I wish no one ever experience infertility and feeling of loosing baby! You are very brave and strong and i do believe you will get what you wish so much. 

have you thought about surrogacy may be it will be a good option for you?? 

I'm 40 and planning baby #2 in Ukraine with surrogate mother) 

My first child was from surrogate too. I have amazing boy Martin and he is the sense of my life now)))

I wish you all the best and good luck. I will pray for you!

With love Tereza


  • lilyofthevalley likes this

#19 pcanoe

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Posted 10 February 2016 - 03:13 PM

Thank you From0to3, I am in Vancouver so I am taking your recommendation and calling Jenny today. I am hoping she will be able to help me too! Your story is giving me hope.


TTC since Oct 2012

IUI # 1 June 2015 - BFN

IVF # 1 Sept 2015 - 33 eggs retrieved, 30 mature, 25 fertilized with ICSI & frozen

FET # 1 Oct 2015- 1 embryo transferred - BFN

FET # 2 Dec 2015 - 1 embryo transferred - th_abfp.gif

Beta 12 dp5dt 95

Beta 19 dp5dt 2904

Beta 23 dp5dt 6984

Beta 26 dp5dt 200

Misscarried at 6 weeks 8388.gif

Planning to transfer 2 embryos Spring 2016

FET # 3 - Mar 31 2016 transferred 2 embryos both 5 day 4BB's

Beta Apr 11 crsd.gif

Beta 12dp5dt 191 yahoo.gif th_abfp.gif

Beta 14dp5dt 642

 

Beta 19dp5dt 5133

Heartbeat measuring 86 bpm @ 6w0d

8w5d u/s shows no heartbeat cry.gif 8388.gif

7 frosties of 8 tested normal w/ CCS

FET # 4 - Nov 1, 2016 transferred 2 embryos both 5 day 4BB's (CCS tested)

Beta Nov 14 crsd.gif

 

Beta 13dp5dt 925  yahoo.gif th_abfp.gif

Beta 15dp5dt 2301

 

Beta 20dp5dt 20936

6w4d u/s shows twins hb's of 115 &122


#20 lilyofthevalley

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Posted 27 February 2016 - 06:48 PM

Hi guys, 

Had the hysteroscopy and biopsy (OUCH!!) and everything looks good. Waiting for biopsy results in 2 weeks. The blood results revealed a slight increase in my immune system so trying dexamethasone during this round. Cross fingers!

 

Started Suprefact Saturday, will start 375 Menopur on March 10th. I'm ready to get off the Marvelon Monday - makes me feel pukey. 

 

I read that a hysteroscopy and a biopsy or endometrial scratch is also helpful for women with repeated IVF failures. Anyone with that experience?

 

Glad to get the thumbs up to give this a last go! Hoping for lots of healthy embryos this round so my children can finally arrive :) Oh please please please work this time.

 

Wishing you all lots of luck and strength!



#21 From0to3

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Posted 28 February 2016 - 11:53 AM

Lilyofthevalley - sending you so many positive thoughts. I have heard that a hysteroscopy does make you more fertile (not entirely sure why). PCANOE - I honestly cannot say enough kind words about Jenny Zhang. She was a huge step forward for my sanity when going through treatment. After acubalance it was really important to me that my acupuncture wasn't closely tied to the fertility clinic. She was so calming- I know you will be in great hands if you do go see her!Lily keep us posted!

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#22 Highest hopes

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Posted 28 February 2016 - 02:30 PM

Lily, if you are having nausea from the bcp I think it's because it can rob your body of B vitamins. I believe taking B6 or a B complex might help.

From0to3, are you saying you had a bad experience with acubalance?
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#23 From0to3

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Posted 29 February 2016 - 09:50 PM

Highest hopes - it was OK. There was quite a bit of upselling of various products and at the time they were really close to genesis which was an awful clinic for me. They had so many joint info sessions etc.and definitely did not feel neutral. I have heard Lorne is very good (I didnt hace him) but in my opinion Jenny Zhang was like night and day in her unwavering help and support. It was also half the price per session. Yinstill felt even swarmier than acubalance. Everyone has a different experience though and me date back to my twin pregnancy in 2013. With my current singleton I didn't do any of it and in fact went swimming and was carrying my 35 pound toddlers immediately after the fet. If anyone is looking for acupuncture in Vancouver the reasonable cost and knowledge of Jenny can't be beat.
  • Highest hopes likes this

IVF#1:17 Eggs, 4-5 Day Blasts: Transferred 2: th_abfn.gif

 FET#1: Transferred 2: th_abfp.gif m/[email protected] th_agrr.gif 

IVF#2: 5 Eggs, 5-5 Day Blasts: Transferred 2: th_abfp.gif Boy/Girl Twins born DEC 2013 babygirl.gif babyboy.gif 

 

FET#2:Transferred 1: th_abfp.gif Baby Girl born July 2016 babygirl.gif  

 

2 Frosties Remaining.


#24 lilyofthevalley

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Posted 13 March 2016 - 11:01 AM

I'm on day 3 of stims (menopur and suprefact plus dexamethasone) and so far so good! Feeling out of breath and dizzy this morning but overall I have less local rash this time around. Yay! The baseline ultrasound went well and I have another ultrasound Friday to see if things are progressing ok. I'm starting to feel twinges in the ovary area so hoping some follicles are getting the message and growing with some healthy eggs in there :) Hoping for lots of good follies this time!!!! How are you guys all doing? Wishing you lots of happiness.


  • Highest hopes likes this





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