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Traveling abroad for DE cycle with blood clotting disorder

Started By maritimeajs , Apr 29 2015 03:01 PM
blood clotting disorder factor v leiden donor eggs

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#1 maritimeajs

maritimeajs
  • Cyclebase
  • 283 posts
  • Gender:Female
  • Location:Calgary (originally from NS)
  • Dx:Tubal
  • My Clinic:RFP Calgary

Posted 29 April 2015 - 03:01 PM

I'd love to connect with anyone who has a blood clotting disorder and has traveled abroad for an egg donor cycle. I'd also like to hear from anyone who decided against it because of their clotting disorder.
I have Factor V Leiden and had a previous pulmonary embolism. I don't have to be on blood thinners all the time but I take fragmin injections when I get surgery or when we tried IVF with my eggs. When I travel I wear super sexy (not!) compression stockings.

Me: 41 42
Fiancé: 42
We have been together 12 years and haven't gotten pregnant.
 
1993- DD ( from a previous relationship)
1995- Pulmonary embolism (diagnosed with blood clotting disorder)
1998- Ectopic pregnancy- emergency surgery to remove the ruptured tube, remaining tube seriously scarred
2012:
Oct- First visit to the RFP clinic
Oct- HSG- remaining tube is open, uterine polyps found
Nov- SHG
2013- IVF #1:
Jan 10 -Surgery (hysteroscopy and D&C) to remove several uterine polyps
Feb 26- AF
Mar 2- Start Fragmin injections (for blood clotting disorder) and 21 days (ended up only being 12 days) of BCP (Marvelon)
Mar 20- (changed to Mar 14) Baseline ultrasound and blood tests
Mar 25- (changed to Mar 17) Start Suprefact injections (End April 3rd)
Mar 27- (changed to Mar 19) AF... Start Gonal F  450 IU injections (End April 2nd)
Apr 2, 5, 7- (changed to Mar 22, 25, 28, 30, Apr 1) Ultrasounds & blood tests
       Mar 22- Stim Day #4: Right side- 4 follicles; Left side- 5 follicles; Estrogen 554
       Mar 25- Stim Day #7: Right side- 6 follicles (three largest- 1.0, 0.9, 0.8cm); Left side- 6 follicles (three largest- 1.1, 1.0, 1.1cm); Estrogen 1883
       Mar 28- Stim Day #10: Right side- 9 follicles (three largest- 1.3, 1.0, 1.2cm); Left side- 7 follicles (three largest- 1.4, 1.4, 1.2cm) ;Estrogen 4874
       Mar 30- Stim Day #12: Right- 9 follicles (three largest- 1.4, 1.1, 1.3cm); Left- 6 follicles (three largest- 1.85, 1.55, 1.3cm); Estrogen 9377
       Apr 1- Stim Day #14: Right- 9 follicles (three largest- 1.65, 1.4, 1.7cm); Left- 6 follicles (three largest- 2.15, 1.95, 1.7cm); Estrogen ? 
Apr 7-10- (changed to Mar 30- Apr 1 Apr 2) HGC injection
Apr 10-12 (changed to Apr 1-3 Apr 4) ER--13 eggs retrieved (7 good, 4 okay, 2 not mature)
Apr 5- Embryologist report-- 9 eggs fertilized naturally
Apr 6- Embryologist report-- 4- 4 cell and 5- 2 cell embryos
Apr 13-15 (changed to Apr 4-6 Apr 7)  Day 3 ET- Transferred best 3- 8 cell embryos. Embryologist thinks 1-2 of the rest will survive to Day 6 to be frozen.
Apr 10- Embryologist report-- 1 survived...but not high enough quality to survive freezing icon_speech_sigh.gif 
Apr 22- Urine pregnancy test- BFN
Devastated... more than I thought I'd be. Not sure where we go from here...

IVF #2:

Jul 21 Start BCP and Fragmin

Aug 4 Start Suprefact

Aug 6 Start Gonal F 450 IU

Aug 12 Stim Day #7: Right side- 7 (three largest- 0.85, 0.9, 0.9cm);  follicles; Left side- 7 follicles (three largest- 0.65, 0.7, 0.75cm); Estrogen 2,844

Aug 15 Stim Day #10: Right side- 9 follicles (three largest- 1.3, 1.1, 1.1cm); Left side- 7 follicles (three largest- 1.1, 1.1, 0.9cm) ;Estrogen 8,080

     Gonal F reduced to 300 IU (risk of OHSS)

Aug 17 Stim Day #12: Right side- 9 follicles (three largest- 1.8, 1.55, 1.5cm); Left side- 7 follicles (three largest- 1.2, 1.35, 1.6cm) ;Estrogen 15,891

     Goanl F reduced to 0 IU

Aug 18 Stim Day #13 Right side- 9 follicles (three largest- 1.75, 2.0, 1.55cm); Left side- 7 follicles (three largest- 1.7, 1.5, 1.5cm) ;Estrogen 16,152

Aug 18 HCG injection and start Dostinex (for risk of OHSS)

Aug 20 ER- 15 eggs retrieved (10 good, 3 maybes, 2 not mature)

Aug 21 Embryologist report- 12 eggs fertilized naturally

Aug 22 Embryologist report- "slow", everything is only at 2 cell stage except one 4 cell embryo...not what they'd like to see sad.png

Aug 23 Day 3 ET- Transferred 3 "perfect" 8 cell embryos. Two of the remaining are only 4 cell and not expect to do much. The rest are 6, 7, and 8 cell and hopefully some will survive to freeze... will find out on Monday, Aug 26

Aug 27 Embryologist report- Froze 4 day 6 blasts (1 was starting to hatch) on Aug 26,  Froze 1 day 7 blast today smile.png

Sep 5 HPT-- BFN sad.png 

Sep 7 Urine Pregnancy test (probably won't get the results until Monday, Sept 9)-- BFN

Oct 11 WTF appointment

FET #1:

Dec 2 Transferred 2 Day 6 blasts (Still have 3 frozen)

Dec 15 Urine pregnancy test

#2 t-bird

t-bird
  • Member
  • 71 posts
  • Gender:Female
  • Location:Ontario
  • Dx:Unexplained
  • My Clinic:LHSC

Posted 29 April 2015 - 04:00 PM

I have FVL too and will be starting IVF in May (locally). My hematologist has put me on prophylactic low molecular weight heparin for the duration of the IVF treatment.

 

I really hope that you will be getting some form of anti-coagulation. I had a number of clots in my leg with the BCP and I know how frightening it can be.


May/June 2015 - First time IVF @ 43 years old. AMH 1.05, FSH 7

16/05/15 - 9 antrals on Day 2

01/06/15 - 3 eggs Retrieved

03/06/15 - 2 eggs fertilized (2 cell & 4 cell)

04/06/15- Transfer two embryos (4 cell & 5 cell)

19/06/15 - BFP!! Beta 872

29/08/15 - 1/10,000 risk on Panorama Test

19/02/16 - Welcome baby THEO!! 

#3 Maralee

Maralee
  • Cyclebase
  • 2291 posts
  • Gender:Female
  • Location:Calgary
  • Dx:Unexplained
  • My Clinic:Foothills, Now Victoria

Posted 29 April 2015 - 06:52 PM

No advice, but happy to hear you are moving forward with things!


Me 30, 31, 32 Hubs 35, 36, 37

See about me for past history
IVF 2
Jan 2013-awaiting consult at VFC...
Feb 2013-Consult a success, off to victoria we go!  Looking at April.  Meanwhile, started gluten/dairy reduced diet with a ton of supplements.  Feeling great!
Day 1...Mar13/13
LH surge Mar 24 Start estrace Mar 27
Day 1, April 8
Fly to VFC April 9-u/s and blood work-all OK
April 10-start stims Gonal 225, saizen 1.66mg, repronex 75
April 15-u/s and bw, all good, 6 follies, all same size, continue and next u/s and bw apr 17
April 17-u/s and bw-all good, 7 follies, similar size, continue and next u/s apr 18.  ER on april 20 or 21
April 18-bw good, u/s now 10 follies but starting to separate in size.  Back tomorrow, ER april 21/22?
April 19-bw good, 1/2 of follies ready...trigger tonight, ER on April 21
April 21-9 retrieved.  Awaiting fertilization reports... fingers crossed!
April 22-Amazing news, 8 out of 9 are mature and all 8 fertilize, 1/2 by ICSI, 1/2 by regular.  How could that happen?
April 23-All 8 still going, mix of 15-19/20
April 24-6 still going, 2 transferred-an 19/20 and 18/20, 2 frozen a 18/20, 17/20, and 2 in culture to day 5-wait and see
May 8-OMG, positive beta!!  517, wow! 14dp3dt
May 10-beta 1060.  Yay!!
May 27-viability u/s...both took, it's twins!  Heartbeats around 140, 1 measures a couple days behind.  CRAZY!
June 16-10 wk u/s, both still growing, hb's 172 and 165. 
July 2-Nuchal-excellent.  Fell in love with them.  hb's 168 and 160, both measure a couple days ahead now.
Aug 16- 18 week detailed, both are amazing.  Team green! Cord insertion issue with baby A discovered.
Oct 10-27wk 4 day, A is 2 lbs, B is 2.2 lbs...may have seen a penis and sac on one of them.
Nov 7-30wk 4 day, A is 3lbs 13 oz, B is 4lbs 2 oz, this is going to hurt.
Nov 21-32wk 4 day, A is 4lbs, B is 4 lbs 8 oz, starting to slow down a bit, and both head down.
Dec 4-34 wk 3 day, A is 5 lbs 2 oz, B is 5 lbs 5 oz, A head down and engaged, B now breech.
 
Dec 17-after falling down the stairs, our baby boy and girl arrived at 36 weeks, small but healthy
Welcome Abigael and Colin.
 

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