Welcome to the group! I'm so sorry you have had to come here, but I think you'll find it very informative and supportive. I too remember the initial gut wrenching shock after finding out about my DH's azoospermia and am feeling for you right now. I remember us just walking around in a daze for a week or so after and feeling so sad. And wanting things to happen straight away to find out what was wrong of course! It was the not knowing that really got to me. Once we had a proper diagnosis things got much easier to handle and accept.
Do you have an appointment with a fertility centre? The first step would be to get an initial appointment. We found that tests happened / a diagnosis was made much more quickly through our local fertility centre than through waiting for a urologist appointment. In fact we cancelled the urology appointment as we'd already started the IVF process by the time the appointment came around and didn't need it anymore. If your clinic has a long wait list see if you can be put on a cancellation list for an initial appointment.
If your DH's hormone levels were normal, the next step would likely be more blood tests to test for any genetic conditions such as kleinfelters, cystic fibrosis, or other sex chromosome abnormalities (sex chromosome abnormaltities are unlikely if hormone levels are normal though). They can take around 6 weeks to come back. Hopefully they'd do these tests before a biopsy, as it can take a while to recover from a biopsy. If these are all normal then a biopsy, or PESA, TESA, or MESA would likely be next.
Previous hernia operations are a very common cause of obstructive azoospermia. And you are right in thinking that obstructive azoo is the best case scenario, as it is easier to treat, so hopefully this is the case for you too. My DH had obstructive azoo, which we found out was due to him having 'atypical cystic fibrosis' which means he has 2 different CF mutations, which cause the vas deferens to be missing. So his hormone levels were also completely normal and we had no idea that that would be the problem. No one in his family has ever had CF and we wouldn't have known without the fertility genetic tests, and he didn't have any other symptoms such as lung problems. So this could also be a possibility for your husband.
Once we had the diagnosis of obstructive azoo due to CF, things got moving fairly quickly. I had to have genetic tests to check I wasn't a carrier of any CF mutations first. Then he had a successful PESA (a very simple operation for obstructive azoo where they basically get sperm directly from the testes using a syringe! It's not as bad as it sounds and is done under local anaesthetic), the sperm that was found was frozen, and then I started IVF meds about 4 weeks later. We were lucky in that it worked first time, and I am now almost 16 weeks pregnant, and have 2 5-day embryos frozen for the future.
I'd say the most important thing for you to do right now is get into a fertility clinic (even before urologist). And don't give up hope! My DH is 40, and I am now 34. We thought we were on the 'old' side to be having so many problems, but we were both in great shape for ivf apparently! There are lots of hurdles to jump through and it's not easy, but this diagnosis doesn't mean you can't have kids.
To give you a rough timeline for us: tried for just over 1 year (2014-2015) unsuccessfully to get pregnant; 1st Jan 2016 went to walk-in GP clinic to get referral to fertility clinic; While waiting for appointment the GP did all hormone and sperm tests, hence finding out about azoospermia; Got cancellation appointment for fertility clinic for mid February 2016 (normally it's a 6 month wait); genetic tests were sent away by fertility clinic and results came back in April; My genetic tests came back mid May; DH had PESA performed late May; I started ivf early July; got positive pregnancy test early August; graduated from fertility clinic mid September, and now I will be seen by a GP for the rest of the pregnancy.
Others on this thread have had much longer more difficult journeys unfortunately. But still don't give up hope!
Feel free to ask any questions and keep us informed.
Take care and good luck :-) XXX
TTC since Jan 2015
Me (34) = all looks ok so far
DH (40) = diagnosed with azoospermia Jan 2016
March 2016: Finally have some answers:
DH has 2 different cystic fibrosis mutations, making him a compound heterozygous carrier for CF
(meaning he doesn't have full-blown CF but a milder form with Obstructive Azoospermia)
Genetic testing shows I am not a carrier - no PGD of embryos needed, although our baby will be a CF carrier.
May 2016: DH had successful PESA
IVF#1: June/July 2016
15 eggs retrieved, 14 mature, 7 fertilized (ICSI), 3 made it to day 5, 1 blast transferred
12dp5dt beta 685 - BFP! Due 31st March 2017 - thankful to so many people on this difficult journey