Hydrosalpinx - IVF Ages 35+ - IVF.ca Forums

Jump to content



Photo
- - - - -

Hydrosalpinx


  • Please log in to reply
17 replies to this topic

#1 Littlemiss1976

Littlemiss1976
  • Just Hatched
  • 3 posts
  • Dx:N/A

Posted 11 April 2014 - 05:01 PM

Hi I'm 38 years old and have suffered with a lot of right sided pain for about 6/7 years. I recently had a MRI on my hip as this pain has always been associated with Sport and the Physio wanted to check the hip.
The result showed a 7cms cyst on the right ovary. The gynaecologist has now suggested this is likely to be a hydrosalpinx. I have now been referred for a laporoscopy.
Does anyone have advice on the following
1) could the hydrosalpinx be the cause of my pain over years in the right buttock, groin and thigh ?
2) if it is a hydrosalpinx will the right tube definitely not work?
3) what are the chances that the left tube will not work

I'd love to think I'd have a child one day and just want to know what complications I might face

Thanks

#2 amp77

amp77
  • 1000+
  • 2746 posts
  • Gender:Female
  • Dx:Unexplained
  • My Clinic:OFC

Posted 11 April 2014 - 05:25 PM

I am not sure what a hydrosalpinx is but I had a large ovarion cyst (about the size of a decent sized potato) that was removed via laparotomy.  I mostly had pain during my menstrual cycle but my legs, back, abdomen, bowels, everything was extremely painful and I would feel like passing out and throwing up.  So, not sure if it really answers your question, but it was my experience with a cyst.


Age 40, DH 44 in Oct.

TTC on and off since 2007 before our second IVF, in 2014, brought us our beautiful son and our first FET brought us our second son in 2017.  Our family is complete!

 

IVF #1 - April 2014 - BFN - no frosties

 

IVF #2 - July 2014 - BFP - 5B-AB and 4 frosties (5B-BB, 2x4B-BB and 3B-BB)

Apr. 13, 2015 - Daniel Erik was born at 5:05 am, weight 8 lbs, 13 oz, and 22" long.  He is perfect in every way.

 

FET #1 - September 2016 - BFP - 5B-BB and 3 frosties (2x4B-BB and 3B-BB)

June 18, 2017 - Matthew William was born at 2:46 am, weight 8 lbs, 11 oz and 21" long.  He is perfect in every way too!

 

 


#3 CdnHockeyGal

CdnHockeyGal
  • Super Moderator
  • 7094 posts
  • Gender:Female
  • Location:Winnipeg
  • Interests:Hockey, baseball & travel
  • Dx:Other
  • My Clinic:Several in Canada & US

Posted 11 April 2014 - 05:42 PM

Hi Littlemiss! I just had surgery to correct a hydrosalpinx in my left tube in Feb. I can't say it ever caused me any pain though. It's a virtual guarantee that the huge with the hydro will not work. I believe it's something like a 10% chance to conceive with the other tube if you don't get the hydro fixed. The hydro as long as it's there has the potential to leak fluid back into your uterine cavity which is toxic to embryos. You'll definitely want it fixed if you want kids. The surgery really is a breeze...I was up and moving around within 48 hours. Best of luck!
It was long, awful & hard. We got very lucky and didn't run out of both emotional and financial resources. We saw some of the most beautiful of people in our lowest moments. Baby Girl arrived Apr 10/2018

#4 Highest hopes

Highest hopes
  • Global 100+
  • 660 posts
  • Gender:Female
  • Dx:Endometriosis
  • My Clinic:McGill, OriginElle, Aurora, & RUH

Posted 11 April 2014 - 06:02 PM

I was recently diagnosed with hydrosalpinx also, and they feel it should be removed.  They didn't recommend correcting it, because I think they feel it's unreliable.

 

CndHockeyGal, I'm surprised they were willing to correct yours rather than removing or clamping it.  Did they discuss all those options with you?  Wow, looks like you went to Cancun for your surgery - to move things along quicker?  How was that?!  Glad you had quick healing.


Dx: Age & Endometriosis & Tubal

IUI & IVF & FET = BFN
Pinterest.com/aquablueglow


#5 Cassandra_Angela

Cassandra_Angela
  • 1000+
  • 2084 posts
  • Gender:Female
  • Location:Hamilton, Ontario
  • Dx:Unexplained
  • My Clinic:HART

Posted 11 April 2014 - 06:18 PM

I had my tube removed because of it. It was a breeze and I was home and cooking dinner a few hours later.


Please see "about me" section for details

Pictures tell a thousand words: https://www.instagra...dra_angela1981/


#6 CdnHockeyGal

CdnHockeyGal
  • Super Moderator
  • 7094 posts
  • Gender:Female
  • Location:Winnipeg
  • Interests:Hockey, baseball & travel
  • Dx:Other
  • My Clinic:Several in Canada & US

Posted 11 April 2014 - 06:56 PM

Sorry Highesthopes - by "fixed" I meant clamped and detached from my uterus...in my mind...rectifying the problem. I should have been more clear. I did fly to Cancun for the process...they had me in 4 days later compared with a 5ish month wait at home. Quality of care was incredible!
It was long, awful & hard. We got very lucky and didn't run out of both emotional and financial resources. We saw some of the most beautiful of people in our lowest moments. Baby Girl arrived Apr 10/2018

#7 Highest hopes

Highest hopes
  • Global 100+
  • 660 posts
  • Gender:Female
  • Dx:Endometriosis
  • My Clinic:McGill, OriginElle, Aurora, & RUH

Posted 11 April 2014 - 07:34 PM

Ah gotcha.  Did they discuss pros & cons of clamping vs. removing?  Just curious.

How did you go about deciding to go to Cancun?  Was it expensive, if you don't mind me asking...


Dx: Age & Endometriosis & Tubal

IUI & IVF & FET = BFN
Pinterest.com/aquablueglow


#8 MrsBR

MrsBR
  • Global 100+
  • 570 posts
  • Gender:Female
  • Dx:Vasectomy
  • My Clinic:MFC/OVO

Posted 11 April 2014 - 07:52 PM

I don't have that much info on a hydrosalpinx. But...I do want to share a bit of my story. I had something cystlike seen on my SHG, I had multiple u/s done by different doctor and an mri. Just wanted to say that half the dr's thought it was a hydro and half thought it was a cyst. Even after mri they had trouble figuring it out. The surgeon I saw said he thought it would be a cyst and it was. All this to say that it could be other things. When I thought it was a hydro they strongly suggested removing the tube before ivf. I had my cyst removed laparascopically and I was running around the recovery room 2 hours later and went out to dinner that night. Good luck!
  • Highest hopes likes this
1 year...6 fresh ivf's...so many failed attempts...we finally got a BFP on Nov 27, 2014. What finally worked: co culture, G - CSF, IVIG, prednisone.Nov 27 Beta 112 Nov 29 Beta 291 Dec 16Saw 2 flickering heartbeats on ultrasound!!!! (from a single blastocyst transfer)Looking like identical twins for us...wowDec 22 control u/s to make sure the babies are growing. Only 1 H/B found.1 twin didn't make it. Just 1 baby for us. Jan 23 NT scan and blood work came back all normal! As per our amazing technician...70% chance it's a girl!Mar 18th 20 week anatomy scan shows a perfectly healthy baby girl!
Madison arrives on July 17 2015 at 37 weeks 2 days! 10 fingers and 10 toes...perfect in every way.


Lilypie First Birthday tickers

#9 CdnHockeyGal

CdnHockeyGal
  • Super Moderator
  • 7094 posts
  • Gender:Female
  • Location:Winnipeg
  • Interests:Hockey, baseball & travel
  • Dx:Other
  • My Clinic:Several in Canada & US

Posted 11 April 2014 - 07:55 PM

I had discussed with my RE and read up before going and was much more comfortable with clamping & cauterizing as I believe there is a risk of nicking the bowel and/or other organs if they remove.

Price really wasn't bad...I investigated clinics in Monteal, BC and Cancun...Cancun was the least expensive and quickest. It was a flat $5000 for the surgery and hystroscopy. So...it was certainly a choice and we aren't taking a holiday but still doable. I can't say enough nice things about FCC...they're great!
It was long, awful & hard. We got very lucky and didn't run out of both emotional and financial resources. We saw some of the most beautiful of people in our lowest moments. Baby Girl arrived Apr 10/2018

#10 CdnHockeyGal

CdnHockeyGal
  • Super Moderator
  • 7094 posts
  • Gender:Female
  • Location:Winnipeg
  • Interests:Hockey, baseball & travel
  • Dx:Other
  • My Clinic:Several in Canada & US

Posted 11 April 2014 - 07:56 PM

If you'd like the contact info just drop me a PM and I'm happy to pass it along!
It was long, awful & hard. We got very lucky and didn't run out of both emotional and financial resources. We saw some of the most beautiful of people in our lowest moments. Baby Girl arrived Apr 10/2018

#11 Highest hopes

Highest hopes
  • Global 100+
  • 660 posts
  • Gender:Female
  • Dx:Endometriosis
  • My Clinic:McGill, OriginElle, Aurora, & RUH

Posted 11 April 2014 - 08:08 PM

Thx for all the info!  and glad to hear the recovery has been pretty decent for most of you :)


Dx: Age & Endometriosis & Tubal

IUI & IVF & FET = BFN
Pinterest.com/aquablueglow


#12 ilovemydogs

ilovemydogs
  • Cyclebase
  • 4806 posts
  • Gender:Female
  • Dx:Other

Posted 11 April 2014 - 09:11 PM

I had my tube removed. It took me a couple of days to start feeling better, but they also dealt with endo in that surgery so that probably made a difference.


  • Highest hopes likes this
Finally seeing the light at the end of the tunnel.

See "About Me" for details.

#13 kali111

kali111
  • Member
  • 76 posts
  • Dx:Tubal
  • My Clinic:leeds

Posted 12 April 2014 - 08:45 AM

Just read this regarding hydrosalphinx. I had it in both tubes which contributed to 3 failed ivf cycles. The consultant said it reduces your chances of ivf to less that 15% as the liquid from the tubes is toxic and flushes the embryos out. Anyway decided to have both tubes removed nov 2013. Went for frozen embryo transfer from last failed cycle and im currently nearly 12 weeks pregnant. We regret not having had them removed earlier as it would have saved alot of heart ache and money. The operation was straight forward and recovery is pretty quick. Hope this helps.
  • Highest hopes likes this

#14 ideagirl

ideagirl
  • Global 100+
  • 261 posts
  • Gender:Female
  • Dx:N/A
  • My Clinic:CCRM (Denver, CO)

Posted 12 April 2014 - 01:09 PM

Hi I'm 38 years old and have suffered with a lot of right sided pain for about 6/7 years. I recently had a MRI on my hip as this pain has always been associated with Sport and the Physio wanted to check the hip.
The result showed a 7cms cyst on the right ovary. The gynaecologist has now suggested this is likely to be a hydrosalpinx. I have now been referred for a laporoscopy.
Does anyone have advice on the following
1) could the hydrosalpinx be the cause of my pain over years in the right buttock, groin and thigh ?
2) if it is a hydrosalpinx will the right tube definitely not work?
3) what are the chances that the left tube will not work

I'd love to think I'd have a child one day and just want to know what complications I might face

Thanks

 

1) perhaps, but ask a specialist about that; 2) I think that's correct, yes; and 3) I don't know that there's any connection between hydro in one and problems with the other.

 

That being said, you need to get the hydro corrected because having hydrosalpinx in one tube can make pregnancies fail all by itself--some of the fluid from the hydrosalpinx can leak into the womb and prevent implantation or cause early demise. In other words, even if the other tube works fine, the hydro can make it impossible or difficult to have a child. I believe the surgery for fixing the hydro is quite minor.



#15 ewok

ewok
  • Global 100+
  • 939 posts
  • Gender:Female
  • Location:Montreal
  • Dx:Tubal
  • My Clinic:was CHUM St-Luc, now Ovo

Posted 12 April 2014 - 02:42 PM

Like the others said, have it removed or "detached".  They saw mine on an ultrasound during my first miscarriage (in 2006).  I went to many ObGyn & one RE and none suggested to do anything about it.  The first ObGyn actually said I could not possibly have an hydro, since I got pregnant (I went for a consult specifically for this and can only say bad things about that guy...).   Most of the readings I did suggested to remove it before IVF, that it can prevent, pregnancy, ..., but I never pushed for a laparoscopy as I was too terrified of the surgery.  Fast forward to last summer, got emergency surgery because of a ruptured ectopic in my other tube.  While I was under, the ObGyn talked with DH about my tubes, and suggested to remove both of them:  the one with the hydro (useless and even harmful), and the other because it was fairly damaged and in his opinion, if left there, put me at high risk of another ectopic (it wasn't my first one actually...).  DH told him to remove it all.  No way did he want to risk having a repeat!

 

I had frequent of pain on that side that disappeared afterwards, so yes, if it pushes on a nerve or something, it might spread pain.  Can't say how high the chances are for your other tube to be unharmed & functional, but it is possible, as I got pregnant somehow...


Me: 38, DH: 38, together since 1995, TTC since 2004
 
PCOS, endometriosis Stage 3
Multiple early pregnancy loss (stopped counting at 8)
Left Hydrosalpinx seen on Ultrasound during my first miscarriage
July 2013: ER visit, found Ectopic pregnancy in right tube, internal bleeding, emergency surgery with removal of both my tubes.  Next phase IVF

IVF #1: March/April 2014, Antagonist protocol with Estrogen priming, OHSS risk, no transfer but many frosties

FET#1: June/July 2014: BFN...
 
FET#2: October 2014: BFP
July 19th: DD is born.  Our little miracle
(more details on About Me page)


#16 Littlemiss1976

Littlemiss1976
  • Just Hatched
  • 3 posts
  • Dx:N/A

Posted 12 April 2014 - 03:54 PM

Thanks for all the replies
This is all new to me so really grateful for all the replies
Am I right in thinking there is a high chance the left tube is problematic also and that IVF could be a problem ?

#17 CdnHockeyGal

CdnHockeyGal
  • Super Moderator
  • 7094 posts
  • Gender:Female
  • Location:Winnipeg
  • Interests:Hockey, baseball & travel
  • Dx:Other
  • My Clinic:Several in Canada & US

Posted 12 April 2014 - 04:15 PM

It wouldn't seem there's any indication of an issue with the left tube? Only the right tube seems to potentially be challenged? If it is a hydro and it isn't addressed it would be a huge obstacle for ivf. If it's dealt with it shouldn't cause any issue. Hope this helps!
It was long, awful & hard. We got very lucky and didn't run out of both emotional and financial resources. We saw some of the most beautiful of people in our lowest moments. Baby Girl arrived Apr 10/2018

#18 Littlemiss1976

Littlemiss1976
  • Just Hatched
  • 3 posts
  • Dx:N/A

Posted 12 April 2014 - 04:38 PM

They are going to deal with it when I get a date for surgery soon I hope a laporoscopy
I guess until then I won't know what it is for certain and any other issues