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Unicornuate uterus and IVF


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#326 meliss19

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Posted 08 November 2015 - 01:56 PM

Just checking in.... Sounds like all the babies and cervixes are doing well this far Hope things are still going smoothly for all. :)
You ladies must be getting excited to finally meet the little one!!
My little man is starting to teeth. There have been a few sleepless nights... He's pretty cute though so it's worth it :).
~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#327 cornflake

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Posted 11 November 2015 - 06:05 PM

New to this forum thing, and new to this issue......Was just diagnosed with Unicornuate Uterus after a heart wrenching year. .....Difficulty getting pregnant, got pregnant with my first only to have multiple problems........subchorionic hemorrhaging and hematoma then premature rupture of amniotic sac and finally was told the baby would not survive but my body didn't know it yet and was induced in my second trimester with a late miscarriage. .....Finally had the nerve to go see a RE and found out this news.......might explain some things.....was pretty terrified but feel a lot better after reading a lot of these posts and success stories....trying to hold on to hope and stay positive.



#328 meliss19

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Posted 12 November 2015 - 09:50 AM

Corn flake - I am very sorry to hear this... That is an incredibly heart wrenching experience :(. Gosh! I hope you take all the time you need to heal from such an experience. That would be so difficult... Do you have family/friends for support right now?

I've found the ladies here are great support and always willing to Listen. It's nice to have others that can appreciate the trying times of trying to conceive, miscarriage, and the unique status of our uterus'.

There are most definitely many success stories....I myself never thought it was ever going to be possible after failed rounds, years of trying, a doctor that was unsure id ever Carry to term, loss... But I now have my five month old son. I only say this to give you a bit of hope that there is always the possibility that it can happen for as long as you want to continue trying. I wish you all the best! 🌹
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~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#329 cornflake

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Posted 12 November 2015 - 04:53 PM

MelissI9--thank you for your kind words....glad to hear there are people who have had successful pregnancies with this. ....I have a couple of friends but it's hard when majority of my friends are all pregnant or just had a baby........they just don't seem to understand the feeling of loss or the difficulty in coping with something like this when everything is so easy for them.....the doctor wants to run a couple more tests from us before we decide on a plan to try again in the future but for right now, just trying to cope with the news.



#330 meliss19

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Posted 13 November 2015 - 09:25 PM

I completely get where you are coming from with that.... It can be a dark and lonely path and throw in everyone around you pregnant or having kids.. Just makes things even tougher. They just don't understand the struggle and all they ever say is 'oh don't worry it'll happen', 'stop trying so hard' or stop stressing about it... All of which are not helpful statements... Not at all! well meaning maybe? But kind of hurtful.. How do you 'try too hard'... I was in similar situation with everyone around me having success. My good friend at the time began trying a year after I began trying and first time got prego. Then two years later I was stillll trying and she decided I want to get pregnant this month and have a girl so she 'timed ovulation' (not that it really had anything to do with it) but she got prego that month... With a girl. It's hard to handle when everything comes so easy for others. You try to be happy for your friends but your so sad, a little jealous, and than a bit upset at their lack of support and horrible comments they make without ever thinking about how it makes you feel.

I found these support forums helpful. I've mentioned it on here before but there is a UU sisterhood yahoo group (if you search it on yahoo search it comes up) you have to sign up for it but there are women from all over the world lots of experience and insight and tons and tons of success stories and knowledge. This groups made me feel sooo much better when my doctor scared the heck out of me that id never ever Carry a baby full term! Women carry twins... So our bodies are capable of carrying one (even twins for some)! I went through cycles where I found it very helpful and then found it discouraging hearing other ppls success stories... I think that's all part of this emotional roller coaster though. I hope you can find some support here!
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~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#331 cornflake

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Posted 17 November 2015 - 05:47 PM

yes I totally agree....I had someone tell me "better luck next time," like I lost a game or something....well meaning, but not at all helpful to say!......I'll look up that yahoo group... I found a couple groups on facebook as well which is nice..... thank you again!



#332 PixieDust

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Posted 24 November 2015 - 03:44 PM

Welcome Cornflake.  So sorry to read about your terrible year.  I'm glad you have better information about your situation.  That was the hardest part for me.  We got pregnant the first time we tried only to have a miscarriage at 7 weeks.  After that, we just couldn't get pregnant again (without the help of IVF that is) and I never suspected it was because I had a UU.  It was a relief knowing why we were having troubles.  It's been wonderful having a community of women who are having similar experiences. Good luck and I hope to read about your success story soon. 

 

Just an update on my pregnancy - I'm 34 weeks.  Feeling pretty good.  I had a bit of scare on Halloween when I had mistaken really bad braxton hicks for real contractions.  The doctor sent me in for an ultrasound and all was good - my cervix was still long and closed.  Now I'm just counting down the weeks until I start my maternity leave  (3 more weeks to go) and get to meet baby (another 3 weeks maybe).  


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Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days

#333 PixieDust

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Posted 14 December 2015 - 11:23 AM

Hello ladies, I hope everyone is doing well. We got an early Christmas present. Our little guy, originally due December 31, was born five weeks early on November 29. He was 4lbs and 15 oz. Other than some jaundice, he was quite healthy. My cervix was fine but my water broke, so they had to induce me. I endured 19 hours of labour, only to end up getting a c-section because the little guy was stuck. The last two weeks have been chaotic but so amazing. :)
Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days

#334 meliss19

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Posted 14 December 2015 - 08:55 PM

Pixie -- ohh my goodness 19 hours and then a c sec your a trooper! Big CONGRATS to you guys!! Very happy to hear your both happy and well now! The first few months are very exhausting but eventually you learn how to sort of function on little sleep.... And it does get a bit better with sleep.. Eventually! ☺️

Enjoy every minute of your little one! All the best to you!

Happy holidays everyone! Here is to a bright year ahead for everyone!
~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#335 KE82

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Posted 15 December 2015 - 06:13 PM

Congrats, Pixiedust! It's great that you got to 35 weeks. Hope the little guy didn't need too much extra time in the hospital. And I second Meliss19's comments: you are a trooper and tho I'm sure you're exhausted beyond words now, it does improve. (I felt like a crazy person for at least a month)

 

Merry Christmas. I hope everyone else is doing well



#336 onthebeaches

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Posted 16 January 2016 - 02:51 AM

Hi ladies

Congratulations Pixie Dust!! You did well! And so glad to hear your baby boy is healthy <3

More good news - our baby boy arrived on 2nd Jan at 39w+1d by natural delivery. He weighed 3.14kg (6 lb 15 oz) and was 54cm (21.2 inches) long. He had a bit of difficulty breathing after a long labor I which he spent 31 hours without amniotic fluid, but he was fine after 5 min on oxygen and he is a healthy growing boy.

I had trouble dilating and ended up needing pitocin and an epidural to get things moving. We were preparing for an emergency CS but in the end the last few cm dilated quickly and we were lucky to have a vaginal delivery. He also had a bit of jaundice in the first few days but was ok to come home with us without needing any treatment.

My obstetrician thinks it is possible that the UU wasn't as efficient at contracting and dilating the cervix as a regular U, and that's why we needed help.

I'm so blessed and amazed to have carried to full term, after being told once by a specialist that I would never be able to. We are setting in wonderfully at home, and I look at our baby boy each day and I can't believe he is here.

I am wishing the very same for all of you strong women on here.

Cornflake I am sorry to hear of the hard road you have been down. I hope with close medical attention you will also overcome this challenge. It's so tough when pregnancy and healthy babies appear to come so easily for others, and they have no idea how blessed they are. Hoping we can all have this one day.
TTC since May 2013. Me 37 DH 38
 
May'13-Aug'14  FAM. Short cycles, short luteal phase. Herbs, TCM, acupuncture, dietary changes to try correct LP. Didn't work.
Aug '14  HSG diagnosed unicornuate uterus. One patent tube with one connected ovary. Other ovary located behind uterus. Both ovaries function normally but don't know if the tube moves between the two ovaries
Aug '14  Low AMH detected. Blood work and DH SA all excellent
Sep-Nov '14  Prog supplements to lengthen luteal phase ineffective
Nov-Dec '14  IVF #1 Failed. 7 eggs, none fertilised
Feb '15 IVF #2 with ICSI. 3 eggs, 100% fertilised, two hatching blastocysts at day 5.
Feb '15 Single fresh embryo transfer BFN
Apri' 15 Single frozen embryo transfer BFP!!!!!
Baby #1 due 8 Jan 2016

 


#337 PixieDust

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Posted 17 January 2016 - 08:03 AM

Congratulations on your baby boy onthebeaches! So happy you made it to term and had a vaginal delivery. It's amazing how different the UU seems to be for each of us. Wishing you all the best as you get know your little one. :)
Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days

#338 soccerfan2014

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Posted 19 January 2016 - 08:58 AM

Congrats Pixiedust and onthebeaches! (Sorry its been awhile since I have logged on) - Glad to see that things are going well.  Hopefully you are getting lots and lots of rest and kissing those babies all the time.  What a blessing!

 

As for me, last month we tried another medicated IUI, and another negative.  So frustrating to know it worked once before.  I feel like I'm getting to the road that I don't know what to do anymore.  I still have the glimpse of hope that maybe it will work on our own.  But geesh, at this point I would have thought that would have already happened.  UGH so don't know what to do.  I just wish someone would tell me what to do.  My husband and I have talked about adoption, then we have also talked about another round of IVF.  Next month I might try another medicated IUI again, and then IVF if it doesn't work.  I just don't know anymore though. 

 

Hopefully the rest of you ladies are doing well. 

 

Cornflake I'm sorry to hear your road thus far, hang in there though we are all here for you and have also traveled down this crazy journey.  Staying positive is the key though!   For some reason as difficult as this is, I feel like there is some sort of silver lining to this madness.  Hang in there girl!


Age: 32

DH: 32

 

15 years ago had one fallopian tube removed due to severe endometriosis.  Also discovered I have one kidney.

February 2014: HSG diagnosed with a unicornuate uterus

May 2014: #1 IUI BFN (used 2.5 mg Femara and Ovidrel)

June 2014: #2 IUI - Cancelled :-( Not ovulating on the "good" side

July 2014: #2 IUI BFN (used 7.5 mg of Femara and Ovidrel)

August 2014: #3 IUI BFN (used 7.5 mg of Femara and Ovidrel)

September 2014: Taking some much needed R&R before starting into the IVF process in October.

November 2014: #1 IVF Retrieval (10 eggs from Left Ovary, 7 fertilized)

December 2014: #1 IVF Transferred 1 - 5 day blast - Froze one blast

March 2015: Laparoscopy and Hysteroscopy revealed a lot of built up scar tissue and determined my uterus is a bit larger than originally diagnosed.  :-)

April 2015: FET BFN

June 2015: Medicated IUI- BFP: Saw the HB at 6 weeks.

July 2015: Miscarried at 7 weeks.  No HB detected.

December 2015: Medicated IUI - BFN

 


#339 meliss19

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Posted 21 January 2016 - 09:44 PM

On the beaches -- CONGRaTs on the safe arrival of your little boy! I hope your settling in nicely and enjoying! That sounds a little scary almost needing the cs but in the end so happy everything turned out well... A term baby and a vaginal delivery - so happy for you!

Hard to say if it was the UU would be interesting to know. I dilated very quickly paused around 8 and then finally went to 10.... But I hemorrhaged afterwords and my OB said a tired uterus was to blame (I pushed for 2.5 hrs)..I asked her and she did not think the uu was to blame ... Who really knows though... Unless there was more research into this. In the end babies are mommas are healthy and I guess that's what counts - sometimes I think for others could be nice to know stats though!

Soccer fan.... So sorry to hear another negative - there's nothing I can say to make it better.. I guess one positive to keep in your mind is that you can conceive as it has happened in the past... I realize it offers little comfort when it's NOT happening again when you want it to though! I appreciate your feelings in wishing someone just told you what to do though... I was to that point and pretty much my DH told me we were trying one more round of IVF.... Then would rediscuss adoption etc. I wish you all the best and hope this journey has a happy blessing soooonnn !!
~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#340 JustaLittleFaith28

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Posted 26 May 2016 - 03:44 PM

Hello! I am 28, and my husband and I have been TTC for only 10 months now, but with no luck. I went in for some basic exams, which all came back fine. They did an ultrasound and were able to find two ovaries, and up to that point, my fertility issues were unexplained. They even measured my uterus and considered it normal in size. During an HSG last month, they only found a connection to my left ovary, and I am going in for an MRI next week so they can confirm the diagnosis for a Unicornuate Uterus. I was so scared when I first heard the news, and I am very thankful to have found this forum. 

 

I have an IVF consultation next week, and I am very scared. I wanted to share my experience because I know that very little is known about UUs and I would love to have some support in this journey. 

 

Thank you so much for sharing your experiences. This thread has helped me tremendously.



#341 PixieDust

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Posted 30 May 2016 - 09:51 PM

Hi there JustaLittleFaith! I hope your IVF consultation goes well and that it's the start of your journey to motherhood. The ladies on this forum have really helped me get through my UU diagnosis. The IVF and pregnancy experience with a UU is fairly unique so it's nice to read about what other ladies have gone through. After two rounds of IVF, I had a successful pregnancy last year and am currently enjoying my time with my little son (who is six months). I wish you all the best and keep us posted on your progress.
Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days

#342 meliss19

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Posted 08 June 2016 - 08:40 PM

Welcome justalittlefaith....! The ladies here have been incredible! I hope you too can find support through your journey here as I did! UU is unique and it's nice to have ppl that understand the additional challenges that go along with the diagnosis. We would love to support you through it... Here is to hoping your journey from here is a short road ahead to motherhood :).
~Meliss19~
TTC since 2010
Took 1.5 yrs + to find a doctor willing to investigate further
2012 HSG, blood work, ovulation tests show no reason why I shouldn't conceive.
Feb 2013 referred to IVF clinic (told 12 month plus wait)
Chlomid for 6 cycles during wait
Referred to Calgary clinic
Oct 2013 IVF info session, more blood work SHG,and offered IVF -found out I was pregnant before trigger shots. Miscarriage just before Christmas 2013
IVF Feb 2014 -- failed cycle
IVF May 2014 - failed cycle
Thaw cycle October 2014 - while on suprefact found out I was expecting
June 2015 - after a five year rollercoaster finally welcomed DS to our lives.

One of the happiest moments in life is when you find the courage to let go of what you can't change.

#343 Pip

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Posted 07 November 2016 - 02:16 PM

Hi, I was wondering if any of you happen to be from Manitoba and have any experience with the clinic here? I was officially diagnosed with UU this past August after my laproscopy. Also had some endometriosis cauterized. They have told me that they have successfully treated others with this condition and feel that I'm a good candidate for IVF. We have our appointment on Wed for an info session and to meet with the counselor. Any tips on what to expect? or what to ask? Does anyone know the purpose of meeting with the counselor?


IVF# 1 - Retrieval on Jan 13th/17 - 12 eggs retrieved, 9 fertilized with ICSI, 5 survived to day 5. 1 transferred on Jan 18/17. 4 frozen embyros.
BFN - Jan 30/17
March 1/17 - natural bfp on 3 home tests!!
March 2/17 - Confirmed BFP! Beta = 200
March 14/17 - First U/S - gestational & yolk sac present
March 24/17 - 2nd U/S, hr = 136 bpm, measuring 6 weeks 6 days. Due date = nov 9th/17 💕

#344 cornflake

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Posted 07 November 2016 - 06:17 PM

There is quite a bit that goes into arranging IVF.  I never got to that point as I decided to quit all of the fertility treatments to take a break. Best of luck though! I know it can be a concern for transferring more than one egg. I was told that I would have to choose to abort one if I ever got pregnant with twins since my little unicorn would most likely not be able to carry twins well.  Each doctor is different though! I'm part of a facebook support group that I really enjoy for our unique UU's and a lot of them have had great success with IVF. 


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#345 Pip

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Posted 08 November 2016 - 12:01 PM

Thanks Cornflake! Do you mind if I ask what facebook support group you are part of?


IVF# 1 - Retrieval on Jan 13th/17 - 12 eggs retrieved, 9 fertilized with ICSI, 5 survived to day 5. 1 transferred on Jan 18/17. 4 frozen embyros.
BFN - Jan 30/17
March 1/17 - natural bfp on 3 home tests!!
March 2/17 - Confirmed BFP! Beta = 200
March 14/17 - First U/S - gestational & yolk sac present
March 24/17 - 2nd U/S, hr = 136 bpm, measuring 6 weeks 6 days. Due date = nov 9th/17 💕

#346 cornflake

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Posted 18 November 2016 - 11:37 AM

There's three I'm a part of right now but one is a generic high risk pregnancy support group but the other two are 1. Unicornuate uterus - I was born a unicorn 2. Unicorn moms to miracle babies  

 

They have a lot of great insight and you get replies a lot quicker through facebook than on here I have found.


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#347 Sruj

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Posted 13 March 2017 - 10:24 PM

Hi guys anyone still hanging with this thread. I just found out I have UU with tubes blocked. So devastating. Ivf is our only option. My first Ivf failed and I starting 2nd Ivf this month. This thread gave some hope to me and I would like to continue posting. Looking for cycle buddies

#348 PixieDust

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Posted 18 March 2017 - 10:39 PM

Hi Sruj,

 

Welcome!  Yes, some of us still follow the thread.  I know it can be quite lonely with an UU so it's nice to have a place where we can discuss similar experiences. I hope your second IVF is going well.  I also did two rounds of IVF to get pregnant with my son.  We're just starting the process for another consultation with the fertility center, since we're ready to expand our family.  I'm hoping to start a FET in the next few months.  :)


Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days

#349 Sruj

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Posted 19 March 2017 - 10:08 PM

Thanks Pixie. All the best for your fet. My Ivf retrieval will be next month. Along with UU I have a rudimentary non-communicating horn. Ever heard of it? Not sure if further reduce my chances of conceiving.

#350 PixieDust

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Posted 26 March 2017 - 06:29 AM

Hi Sruj, yes most women with a UU will have a rudimentary non-communicating horn. It just means one side of your uterus is underdeveloped. You can get pregnant in the side that is fully developed. For me it's my left side which underdeveloped and I got pregnant with just my right. IVF should increases your chances since you have blocked tubes. Once they put the fertilized egg in your uterus, it's kind of up to the egg to implant and the odds are like any other pregnancy. Good luck on your egg retrieval. I finally got an appointment with my fertility centre. The earliest date was in June. Geez, they're super busy. We will likely start our FET in September judging by the wait time.
Me - 38 years old, Husband - 43 years old TTC since 2012
Pregnancy and miscarriage, June 2012
Diagnosed with UU, September 2013
IVF #1, September 2014, 1 embryo transferred
IVF #2, March-April 2015, 1 embryo transferred, four frozen embryos
BFP - April 27, 2015
Baby boy born November 29, 2015 at 35 weeks, 3 days