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finally had consult


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#1 Janice_trying

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Posted 28 October 2008 - 02:07 PM

So I finally had my initial consult today - finally being after 3 and a half years ttc and 19 months since I first asked for help. We actually got a call late yesterday afternoon that they had a cancellation this morning.

I previously had hsg which showed 1 blocked tube, although I was never really provided any explanation.

So I am still processing from my appointment this morning. I am very glad to finally have answers, but was hoping for maybe a shorter/less costly/less stessful/simpler solution. Here is what they recommended: lap surgery to remove my left tube and look at the right. They suspect that it is filled with toxic fluid and showed me the images from my hsg that OBGYN did. They suspect the toxic fluid that is built up that went back into the uterus and caused the m/c I had earlier this year. Then they recommend IVF. He said that if I really wanted to, I could try IUI, but that he doesn't recommend and thinks it would just waste time, but I guess something to maybe consider while waiting for IVF. He suspects that whatever caused the problems with the left tube is now also causing problems with the right as I have a lot of pain there. We are going for more blood work and DH has to repeat his sperm test to make sure there aren't any other problems.

So I guess at least I have some answers. But that also means if we take his advice and proceed with things, I will likley have a lot more questions for you girls that have done IVF. Does anyone have any thoughts or suggestions, or know of any other things we might be missing or could try?
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




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#2 alwayshope

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Posted 28 October 2008 - 02:25 PM

Hi Janice trying,
wow isn't the waiting frustrating? It took me almost 3 years and 2 lap surgery's to finally come to a definitive answer to my if problems. I am going for my first appointment for ivf next Tuesday. I am STILL waiting for a surgery appointment to remove both my tubes. I am actually happy about this because now at least the government will pay for ivf (if both tubes are blocked)
My advice to you is just find out 100% what is going on with your tubes. Then at least you can make a informed decision....arghhh nothing is ever easy is it? Well that is just a thought from a girl who has been through te waiting game for a LONG time!

ttc:8 years
me:40 dh:36 ( started ivf at 35
oct 31:lap &hyst found both tubes blocked,dr opened right side Ivf sugested
april 10 starting clomid eeehhhh!
hopefully up coming iui end of april
april 15 1 foll 16mm left
1 fol 13mm right,linig 2.5mm yikes!!!
april 19,all looks good...iui today
april 20,2ww
bfn
Tubes removed nov 18th 2008. ouch!!!


August 26 start BCP YAH!!!!
sept 20th,ultrasound ..2cysts on right ovary,cant find left? 1 more week on BCP
sept 27th ultrasound 2 cysts are now BIGGER???? 2 more weeks on BCP arghhh

Cycle cancelled,non responsive to puregon Fsh 15.

IVF# 2
Jan 27,ER 5 follies
Jan 30,ET 2 good embies
BFP...
Feb 01 ,Chemical pregnancy.

IVF#3
April 13 start Suprefact
April15 start Menopur
April 26 Er 9 follies,6 fertlised
May 01 Et 2 Excellent blsts
2ww begins.
May 10 beta #1 108 BFP yippeee
may 12 beta #2 314 !!!!
may 31 u/s
Jan 16 2011 my beautiful DD is born.

Dec 2011 FET ,chemical
April 2012 IVF #4
9 embies,3 transferred ,none to freeze
mc at 11 weeks

IVF #5 Jan 2013???

march 15 started menopur...fingers crossed.

March 29 ER 4 eggs

April 3 et of two blasts. other two did not make it to freeze. April 8 +hpt 5dp5dt Beta 9dp5dt= 444 Beta 12dp5dt=2164 !!!!! 1st scan 2 sacs ,1 hb 113b/m fx next scan 2nd h/b is there.

May...no heartbeat, both babies gone. IVF journey is over. No more $ no more tears.

 

Oct 2015. Moving on to adoption....please let this work!!


#3 stillhoping

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Posted 28 October 2008 - 07:07 PM

Hi Janice-Trying,

You've had such a long wait just to get in for a consult -- I'm glad you have some answers. I am sorry about your m/c and admire you for taking the next step forward.

I have had lap surgery to remove a big cyst and found it a quick recovery -- not the same thing but still. I think I was up washing dishes (groan) by the next morning (sometimes quick recovery is NOT a good thing...) I guess then they would more definitively be able to tell you what has caused your tubal problems. It sounds like they are pretty certain that this is what caused your m/c so I guess they are hesitating to recommend an IUI for this reason, since you might get pregnant again and face the same thing.

I'd make sure they do all the tests they need to do before IVF and make sure everything is up-to-date, like HSG/hysterscopy, hormone levels, etc. (Like if your HSG was a while ago, then they might wish to update, because things can change.) Some sites recommend hysterscopy over HSG because it allows a more detailed look at the uterine cavity, but I think that's just some docs' opinions, since HSG seems to be the standard test. Have they done a recent HSG/hysterscopy to check about whether your right tube is blocked and for any new uterine issues?

I'd ask your RE and I'd also ask the on-site RE's for any suggestions they might have -- sometimes, different RE's have different recommendations (although there's only so much they can do without actually examining you, it is still quite helpful.) I'd also want to know about if there's any substantial risks, etc.

If you think traditional Chinese Medicine and nutrition therapy might be helpful, I'd also ask the experts here about any recommendations they might have, even if it's for suggestions re: what might help you recover more quickly. (I'm not sure about what they might suggest but perhaps it can't hurt.)

Hope you feel good about whichever next step you choose to take and that it leads to a nice healthy pregnancy for you.

Best wishes and luck :flowers:
Me 42 and holding...; DH 41, counting normally.
TTC 6 years or so... have lost count
5 IUI's, 1 cancelled IVF, 2 full ones
Jan 2008 IVF - 13 eggs, 9 mature, 7 fertilized, 2 made it to blast, 1 to morula. BFN.
March 2009 IVF
ER - many, many follicles; 10 eggs, 9 mature, 6 fertilized
ET - transferred 4 embies on Day 3.
First beta = 61.
Second beta = 17. Chemical pregnancy.
Looked at options but now trying to let go....getting closer but still hanging around this site. I don't know why.
Smoking big cigars, drinking daily beers and tequila, and eating a lot of cake. (kidding, except for the cake maybe....)

#4 Janice_trying

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Posted 28 October 2008 - 10:39 PM

disappointed and stillhoping - thanks for your replies and definately gave me some things to think about and more questions. I have never had hysteroscopy and my hsg was in Feb 2008, so not that long ago. What is the difference between the 2? The wierd thing is that it showed my left tube was the blocked one, but I have pretty bad pain on my right side - even during the exam today it really hurt, and is still a bit achy. So I am a little confused about that, and question whether the films were just backwards (I have had x-rays of a right foot labelled as left before, so I guess you never know, mistakes happen). I am getting up to date bloodwork done. The other thing is that they said when they looked at the images from hsg, my uterus was tipped, but on another ultrasound (I'm not sure if it was one before or after) they said it wasn't - anyone know what that means? Wow, I guess now that I am finally in and working towards having some answers and a plan, I have so many questions now!!

disappointed - I see in your signature that it looks like you are in Ontario - the program where the gov covers IVF if both tubes are blocked - do you know if that is provincial or federal program? How long have you been waiting for your surgery to remove the tubes? I got the sense for me that they were concerned that what was going on with my left tube (although they aren't sure exactly what it is, and they don't think it is endometriosis as I don't really fit the typical symptoms) may spread to the right, so they were hoping to remove the left sooner rather than later. And they made it pretty clear that they 100% recommend removing the left no matter what further direction we go in, because of the risk for ectopic and causing another m/c.

Thanks again for your suggestions!
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




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#5 baby2be

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Posted 29 October 2008 - 12:07 AM

Janice,

Both of my tubes were damaged and fluid filled. My RE had me remove both of them last year. It was well worth it. The tubes can be drained, but the fluid will come right back and no point in risking it when IVF costs so much.

My tubes couldn't be removed via lap because of the scarring and tubes being stuck to intestines, so I had full abdominal surgery and it took me a bit to recover.

Best of luck and I hope the wait won't be too long!

Dana
ME-30 DH-39
TTC 8 years
1st IVF May/June 2006- Chem pg
2 FETs-BFN
PCOS, Damaged Tubes
Tubes removed May 2007
2nd. IVF Oct/ Nov 2007- BFN
3rd. IVF Feb/ March 2008- BFN
3rd. FET July/ Aug 2008- BFP Beta 6dp5dt 9, 8dp5dt 45, 11dp5dt 131, 15dp5dt 971, 21dp5dt 3060
4th. FET July 29th, 2010.
BETA 5.5dp5dt 14.6, 7.5dp5dt 53.6,10.5dp5dt 149.4,17.5dp5dt 1902, 19.5dp5dt 3282
Ultrasound showed one little bean!!

Vanessa arrived April 28, 2009!!!
<a href="http://lilypie.com/"><img src="http://lb3f.lilypie....hp/mhxbh8w.jpg" width="60" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb3f.lilypie....com/mhxbm7.png" width="400" height="80" border="0" alt="Lilypie Third Birthday tickers" /></a>

Jaydan arrived April 9, 2011
<a href="http://lilypie.com/"><img src="http://lb1f.lilypie....hp/RmHSFJO.jpg" width="100" height="80" border="0" alt="Lilypie - Personal picture" /><img src="http://lb1f.lilypie....com/RmHSm7.png" width="400" height="80" border="0" alt="Lilypie First Birthday tickers" /></a>

#6 stillhoping

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Posted 29 October 2008 - 11:25 AM

Hi Janice-trying - my understanding is that they do an HSG or a hysteroscopy but don't need to do both. I think they provide the same information. You could ask the RE on this site about the difference and whether one might offer more info. With a hysteroscopy, they send a teeny-tiny camera up into your uterine cavity to look for problems and I believe they also send some liquid through your tubes (don't ask me on how that all works...) to check that everything is in working order. It sounds like your HSG is pretty recent. You could ask if a hysteroscopy would offer any additonal info but I don't know if it would or not, except it offers a photographic look at the inside of your uterus.

I'd definitely check about why your pain is on the opposite side of the blocked tube. It might be deferred pain or it might be another issue with your tube or something else. I expect this is what they would hope to determine from a laparoscopy.

Not the same thing, but when they told me I had a huge cyst, they thought it was on the other side (ultrasound technician and doctor). I thought this was weird since all my pain was on the opposite side. When they actually "went in," they nearly couldn't find the cyst (despite it being the size of a large orange)... surprise! It was on the side with the pain afterall! I asked about this afterwards and was told that sometimes a sonogram can reverse things. You've had an HSG, so not the same thing, since this offers an accurate picture of your tubes and blockages -- but I'd still ask about the pain. I'd also ask which was more likely to be accurate -- the ultrasound or the HSG re: tipped uterus -- it may be they don't know until they are "in" there.

Hoping for the best for you! And a speedy journey, now that you've had your consult.
Me 42 and holding...; DH 41, counting normally.
TTC 6 years or so... have lost count
5 IUI's, 1 cancelled IVF, 2 full ones
Jan 2008 IVF - 13 eggs, 9 mature, 7 fertilized, 2 made it to blast, 1 to morula. BFN.
March 2009 IVF
ER - many, many follicles; 10 eggs, 9 mature, 6 fertilized
ET - transferred 4 embies on Day 3.
First beta = 61.
Second beta = 17. Chemical pregnancy.
Looked at options but now trying to let go....getting closer but still hanging around this site. I don't know why.
Smoking big cigars, drinking daily beers and tequila, and eating a lot of cake. (kidding, except for the cake maybe....)

#7 alwayshope

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Posted 29 October 2008 - 02:12 PM

Hey Janice trying
I 100% can totally feel what you are going through.
MY 1st doctor told me I had blocked tubes but he managed to open one during a laparoscopy,he also told me my left tube was beyond repair. 3 months later a HSG showed both tubes open???? my 2nd (had to get second opinion)doctor did another lap and I was told both tubes were completely blocked and had to be removed as they were full of fluid ect... He also said he was gonna get me in in 6 weeks because of the urgency of it. that was 8 weeks ago...still no news,no date set. !!!!! :wall:
I am pretty sure it is the provincial gov that covers ivf for blocked tubes because I was living in Quebec before and never heard of that province having any funding!
Seriously...YOU have to take matters into your own hands,get 2nd or even 3rd opinions if you feel your answers are not getting answered! Nothing can be as frustrating as not getting answers and the feeling of going around in circles.
My first doctor told me that the HSG could actually push the tubes open temporarily because of the pressure,which I find unfair because then the gov does not pay for ivf when in reality the tubes really are closed!
My second Lap was a pain but it got me the government coverage so....
I hope I am not confusing you more.

ttc:8 years
me:40 dh:36 ( started ivf at 35
oct 31:lap &hyst found both tubes blocked,dr opened right side Ivf sugested
april 10 starting clomid eeehhhh!
hopefully up coming iui end of april
april 15 1 foll 16mm left
1 fol 13mm right,linig 2.5mm yikes!!!
april 19,all looks good...iui today
april 20,2ww
bfn
Tubes removed nov 18th 2008. ouch!!!


August 26 start BCP YAH!!!!
sept 20th,ultrasound ..2cysts on right ovary,cant find left? 1 more week on BCP
sept 27th ultrasound 2 cysts are now BIGGER???? 2 more weeks on BCP arghhh

Cycle cancelled,non responsive to puregon Fsh 15.

IVF# 2
Jan 27,ER 5 follies
Jan 30,ET 2 good embies
BFP...
Feb 01 ,Chemical pregnancy.

IVF#3
April 13 start Suprefact
April15 start Menopur
April 26 Er 9 follies,6 fertlised
May 01 Et 2 Excellent blsts
2ww begins.
May 10 beta #1 108 BFP yippeee
may 12 beta #2 314 !!!!
may 31 u/s
Jan 16 2011 my beautiful DD is born.

Dec 2011 FET ,chemical
April 2012 IVF #4
9 embies,3 transferred ,none to freeze
mc at 11 weeks

IVF #5 Jan 2013???

march 15 started menopur...fingers crossed.

March 29 ER 4 eggs

April 3 et of two blasts. other two did not make it to freeze. April 8 +hpt 5dp5dt Beta 9dp5dt= 444 Beta 12dp5dt=2164 !!!!! 1st scan 2 sacs ,1 hb 113b/m fx next scan 2nd h/b is there.

May...no heartbeat, both babies gone. IVF journey is over. No more $ no more tears.

 

Oct 2015. Moving on to adoption....please let this work!!


#8 Janice_trying

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Posted 29 October 2008 - 02:20 PM

Thanks for the info ladies. Definately some things for me to think about and questions to ask. I also found ti interesting that at first when the RE was reviewing the report for the hsg, he said it was worded funny and wanted to see the actual images. The images showed something very different from what the report said. So maybe that was some of the confusion you had disappointed?
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




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#9 alwayshope

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Posted 29 October 2008 - 03:20 PM

Actually ,the dr showed me the xray right away and yep...fluid had poured out both tubes proving that both were open...who knows...very weird.
I do have a lot more faith in my new doc though.
I really hope you can get to the bottom of all this and soon,''Good luck!!! :D

ttc:8 years
me:40 dh:36 ( started ivf at 35
oct 31:lap &hyst found both tubes blocked,dr opened right side Ivf sugested
april 10 starting clomid eeehhhh!
hopefully up coming iui end of april
april 15 1 foll 16mm left
1 fol 13mm right,linig 2.5mm yikes!!!
april 19,all looks good...iui today
april 20,2ww
bfn
Tubes removed nov 18th 2008. ouch!!!


August 26 start BCP YAH!!!!
sept 20th,ultrasound ..2cysts on right ovary,cant find left? 1 more week on BCP
sept 27th ultrasound 2 cysts are now BIGGER???? 2 more weeks on BCP arghhh

Cycle cancelled,non responsive to puregon Fsh 15.

IVF# 2
Jan 27,ER 5 follies
Jan 30,ET 2 good embies
BFP...
Feb 01 ,Chemical pregnancy.

IVF#3
April 13 start Suprefact
April15 start Menopur
April 26 Er 9 follies,6 fertlised
May 01 Et 2 Excellent blsts
2ww begins.
May 10 beta #1 108 BFP yippeee
may 12 beta #2 314 !!!!
may 31 u/s
Jan 16 2011 my beautiful DD is born.

Dec 2011 FET ,chemical
April 2012 IVF #4
9 embies,3 transferred ,none to freeze
mc at 11 weeks

IVF #5 Jan 2013???

march 15 started menopur...fingers crossed.

March 29 ER 4 eggs

April 3 et of two blasts. other two did not make it to freeze. April 8 +hpt 5dp5dt Beta 9dp5dt= 444 Beta 12dp5dt=2164 !!!!! 1st scan 2 sacs ,1 hb 113b/m fx next scan 2nd h/b is there.

May...no heartbeat, both babies gone. IVF journey is over. No more $ no more tears.

 

Oct 2015. Moving on to adoption....please let this work!!


#10 Janice_trying

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Posted 29 October 2008 - 04:00 PM

disappointed - yeah, I have a lot more faith in my RE than I did my obgyn, who in my opinion, was pretty useless. The RE yesterday was actually pretty shocked with the lack of explanation she had given me after the hsg and in general. So it is very nice to have someone that seems to really know what they are doing, and priority of getting women pregnant. My DH couldn't come to the meeting, but when I was talking to him about it afterwards, he seemed to want to jump right in to everything with both feet, which is good I guess since even a year ago he was hesitant about it all. That being siad, he's not the one who has to have surgery and oodles of needles! All he has to do is produce samples - how hard is that LOL!
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




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#11 Janice_trying

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Posted 03 November 2008 - 02:16 AM

Thanks again ladies. For those of you who have had surgery to remove tubes, or are waiting to have surgery (sorry for your wait disappointed!), what helped you to make the decision to go ahead with it? Did you ever regret doing it at any point? For me I think I am still at the stage of having to accept that we need to do IVF and that nothing else will work. Which I think I am getting closer to accepting, and going ahead with what I always said about doing whatever it takes. Was it an easy acceptance for you? I am apprehensive about the whole thing. Dana, thanks for your comment that the fluid can come back if the tubes aren't removed and that you believe removing both your tubes was the best thing you could have done. It is acutally helping me to sort of confirm that it is the right thing to do. Thank you girls!!!
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




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#12 MissErin

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Posted 03 November 2008 - 10:23 PM

Hi JaniceTrying,

I had an HSG in May 2007 and both of my tubes were blocked. I had a lap in March? 2008 and the doc opened and repaired my left tube but my right one was too damaged to fix. I was told I'd need IVF b/c chance of getting pregnant 'naturally' was extremely low. My obgyn, who was the one that did the Lap, told me that the RE would likely want me to remove my right tube b/c of the toxic fluid it can contain. So when I had my consult with the RE I was prepared to hear that they wanted my right tube removed. Basically he said the same thing your doc said, that the fluid comes and goes and is toxic and prevents you from getting pregnant. When I had my us at the RE's there was no fluid in the tube at the time but was told it comes and goes. The RE left the decision to remove the tube before IVF or go ahead with IVF w/o removing it to me. I decided to have it removed. This will happen before Christimas via Lap which is only a 2,3 day recovery. If he can't remove it he's going to clip it. The RE said I should ideally have this done at least 4 weeks before IVF. I'm not going to be offered and IVF cycle until Jan/Feb/March anyway so I might as well use this time to tie up all the loose ends so to speak.

It's funny b/c when I was first told I'd likely need to have one of my tubes removed I was very sad, it was weird to know that they are going to take a part of me out and 'throw it away' and now that I've had all of this time to think about it, I'm just like take it out, get it over with, it's not doing me any good. I'm completely ok and happy with my decision so far. I'm not looking forward to another surgery but I have to do what I have to do. I don't want to spend all of this time and $$$ on IVF only to have my tube prevent any of it from working.

And who knows, this damaged tube could be causing me pain that I'm not even aware of and won't realize until it's gone.

I think this decision would be harder if I had to have both tubes removed. For now, I still have one good tube. I can't deny that I haven't been daydreaming about getting pregnant all on my own once it's gone :rolleyes:

Oh and one more thing, when I went for my annual violation :D with my reg doc she told me that sometimes when something is wrong with your body - referring to my damaged tube - your body will naturally prevent you from getting pregnant b/c it knows something is wrong. Those weren't her exact words but it was along those lines.

When is your surgery scheduled for?

Best of luck
Erin
TTC#1 since August 2005
HSG May 2007 - right tube blocked
Lap March 2008 - Actually both tubes are blocked, left tube fixed, right tube too damaged Referred to RE April 2008 for IVF!
First apt / info session Sept 11 & 12
Sept 12 2008 Put on IVF wait list
Dec 18 - Lap, right tube removed, D&C, hysteroscopy
IVF March 2009 = twins girls born Nov 26,2009
Oct 2011 miracle natural pregnancy = heartache....ectopic
FET one day3 embie May 22, 2012=BFN
FET one day5 blast Dec 9, 2012=BFP! US Jan 4 shows a baby with a heartbeat measuring 6w6d!EDD August 28th 2013
August 28th 2013 baby boy arrives, our family is complete!

#13 Janice_trying

Janice_trying
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  • Gender:Female
  • Dx:Tubal
  • My Clinic:Edmonton

Posted 04 November 2008 - 12:40 PM

Hi Erin - thanks for sharing. I don't have the surgery scheduled yet. DH couldn't be at our first consult, so we put off making a firm decision until he also had a chance to talk to the RE. It does seem scary to think about, doesn't it? But at the same time I know in my head that it isn't doing me any good, and could potentially be doing harm. So it does seem like the right thing to do. DH is now sort of bucking the idea of IVF and doing his part leading up to it (ie: cutting back drinking, taking vitamins) and it seems like he just doesn't get it, and that what we women will have to go through is far worse than what he has to do. I was so mad at him lastnight when he started saying that. So we need to sit down and talk about it some more apparently. I am not going to go through surgery and all the meds, if he isn't going to do his part.
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




Posted Image

#14 blueslippers

blueslippers
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  • 409 posts
  • Gender:Female
  • Location:Edmonton
  • Dx:Endometriosis
  • My Clinic:PCRM (Burnaby), now back to Edmonton

Posted 05 November 2008 - 02:41 PM

Janice - did you see Dr. Motan or Dr. Cumming at the Edmonton clinic?

Dr. M is my dr and he is really good. He's very good at giving you useful stats about success rates and research based evidence to support medical decisions. He's doing my third surgery in a month and I'm totally at ease about it because I trust him and know he'll take care of me. He did my first lap in January 07 and discovered stage III endo, he also, sadly, did my D&C after our loss in May 07. Did they recommend you to the Edmonton IVF clnic or are they still referring out to Calgary and BC?

It's a lot of information to process and some big decisions to make. Sadly, in our system, waiting to get second opinions could take years.

The funding for IVF is only in Ontario and only for Ontario residents (not people that go to the Ontario IVF clinics that live in other provinces). I have friends that moved to Ontario for 2 years to do IVF their, didn't work. they moved back to Alberta and did an IUI (on other partner, it was a female/female couple) and now have one year old twins.

I'm having a hysteroscopy done which is a tiny camera that looks at your insides of the uterus. An HSG sends radiopaque dye through your tubes and xrays them to see the dye moving through the tubes and out to your abdomen. It also takes an xray of your uterus, but isn't the same as the hysteroscopy. The laperoscopy looks at the outside of your uterus and abdominal organs for abnormalities. Often these are all done at the same time during your "lap" but they are different procedures.

Well, good luck with everything. What a relief to finally be getting some answers (even if they aren't the answers we like). I find it better than "waiting".

J.
Me 38 DH 38 TTC x 9 years IUI with injectables x 4 BFN endometriosis surgery BFP March 2007 with IUI, m/c at 8w2d:( 2 more IUI, BFN IVF 1 and 2 BFN FET 1 BFN discovered I was a Type I diabetic (WTF?) started insulin failed adoption of Baby Boy May 2009 (mom changed her mind via Text Message) back to the clinic IUI #7 BFP, Baby boy E born at 37w via induction (placental abruption)July 18, 2010 8lbs4oz doing great! took a break to breastfeed until 2012 (only part of this that ever came easy for me) TTC #2 January 2013 IUI 1B, 2B, 3B BFN IVF #1B BFP but slow and low betas, m/c one twin 6w, lost the other one at 9w FET #1B Feb 19, 2014 transferred last two embies. BFP - praying this one works out because I think we are done with ART otherwise.

#15 waiting-2-be

waiting-2-be
  • Member
  • 132 posts
  • Dx:Male Factor
  • My Clinic:Ottawa Fertility Clinic

Posted 05 November 2008 - 07:39 PM

I was told I had 1 tube blocked after 2 HSG's (the test where they shoot the water through to see if they are open). My RE thought after the first test that my tube was just spasming b/c of the pain. We repeated the test, this time no pain and still could not get the water through. He suggested a lab to see if/why it was blocked. Guess what, it wasn't. No blockages/endo anything. My DH had done the basic seman analysis which should low-normal morphology. After my normal results, we paid to have the Kruger seman analysis (way more specific), low and behold, severe morphology issue.

So my advice is if you haven't had this test for your DH, do it while you wait for the lap.

We still ended up doing IVF, but hte wait could have been shorter.
Me:30, DH 30
TTC for 2 yrs
Summer '07: met RE and began testing.
Dec '07: 2 positive tests for one blocked tube.
Feb '08: exploratory lap-found NOTHING! Tubes open!
March '08: Kruger test for DH: severe morphology issue (2.5%)
IVF #1:
ER: July 2nd: 12 eggs
8 fertilized
ET: July 7th: 2 transfered (one grade 3.5, one grade 2.5) and none to freeze.
1st beta July 18/08: BFP!! 123
1st U/S Aug 11/08: One baby! Heart beat 158 bpm. We have been referred onto the O.B.
2nd U/S Sept 15/08: Heart beat 158bpm again! He/she was moving all over the place!! Crazy!
3rd U/S Oct 30/08: It's a BOY! I can't believe it! 132bpm
4th U/S (due to low lying placenta) Dec 10th/08: For sure a boy; placenta still low lying
5th U/S Jan 15th/09: Placenta no longer low-lying! Yippee! Now there is too much amniotic fluid :( Another U/S in 2 weeks...
6th & 7th U/S: amniotic fluid still mildly high, but on the decline. Dr wants to monitor but baby looks great! Approx. 5.5 lbs !
8th U/S: amniotic fluid unchanged, OB says no more U/S needed. I'm going to miss seeing the little guy every 2 weeks. Approx. 6.5 lbs. Any time now!!!!

Our little boy was born on March 31st, 8lb 6 oz, 20.5 inches long, 6 days overdue. We are so blessed.



Nov 2009: Surprise natural pregnancy!! In shock, but thrilled. I have to get back to work ASAP :(
EDD: July 21/10

#16 Janice_trying

Janice_trying
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  • Gender:Female
  • Dx:Tubal
  • My Clinic:Edmonton

Posted 06 November 2008 - 12:04 AM

blueslippers - I see Dr. Motan as well. I have only had the 1 appointment with him so far, but my first impression was good. He did seem to really know what he was talking about. Hearing you say that you trust him to do your surgery and have had surgeries done by him in the past is helping to put my mind at ease. I am assuming that he would probably do a hysteroscopy at the same time as the surgery just to confirm the blockage and check the uterus as well, as on my HSG it looked like my uterus was tipped. I guess I just want to know that he will double-check to make sure the tube is actually blocked before he would remove the tube. Sorry to hear about your m/c, I had one this summer as well. We haven't actually gone on the list for IVF anywhere yet, since my DH couldn't be at the appointment, we decided to wait until the next appointment to make a decision. Although I am seriously considering just calling and asking them to put me on the list for surgery and IVf. Our next appointment is on Dec 9 and I am starting to get impatient already!

Waiting-2-be - thanks for the info. I will check to see what exactly DH had done.
Me 33 & DH 33

TTC #1 April 2005 - April 2009
M/C Aug 2008
Feb 18/09 - left tube (hydrosalpinx) removed
IUI #1 April 2009- BFN
Miracles do happen!!!
OI with Gonal-F- April 2009 - IUI cancelled as lead follie on left ovary and no tube on that side. 2 small follies on right but won't catch up before ovulation.
Surprise BFP on cancelled cycle!! Somehow either a small follicle grew fast or tube caught egg from other side.
DS#1 born December 2009 (5 weeks early)


TTC #2 October 2010 - July 2011
IUI #1 - March 18, 2011 (puregon) -BFN
IUI #2 - June 1, 2011 (puregon) - BFN - Again have cysts from ovestimulation, can't cycle
IUI # 3 - July 19, 2011 (Puregon)- BFP! Hpt 14dpiui Aug 2, 2011. Beta #1 Aug 4, 2011= 317 (16dpiui). Beta # 2 Aug 8, 2011=2165 (20dpiui)
EDD April 10, 2012

DS #2 Born March 11, 2012

Our family is complete now.




Posted Image

#17 blueslippers

blueslippers
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  • 409 posts
  • Gender:Female
  • Location:Edmonton
  • Dx:Endometriosis
  • My Clinic:PCRM (Burnaby), now back to Edmonton

Posted 12 November 2008 - 03:11 AM

blueslippers - I see Dr. Motan as well. I have only had the 1 appointment with him so far, but my first impression was good. He did seem to really know what he was talking about. Hearing you say that you trust him to do your surgery and have had surgeries done by him in the past is helping to put my mind at ease. I am assuming that he would probably do a hysteroscopy at the same time as the surgery just to confirm the blockage and check the uterus as well, as on my HSG it looked like my uterus was tipped. I guess I just want to know that he will double-check to make sure the tube is actually blocked before he would remove the tube. Sorry to hear about your m/c, I had one this summer as well. We haven't actually gone on the list for IVF anywhere yet, since my DH couldn't be at the appointment, we decided to wait until the next appointment to make a decision. Although I am seriously considering just calling and asking them to put me on the list for surgery and IVf. Our next appointment is on Dec 9 and I am starting to get impatient already!

Waiting-2-be - thanks for the info. I will check to see what exactly DH had done.



I'm pretty sure the Edmonton clinic uses the Krueger analysis for their sperm tests. My DH previously had the other type done at our old gyne office and then we had the krueger test done at edmonton. But maybe I have that backwards, it's hard to keep it all straight after three years.

J.
Me 38 DH 38 TTC x 9 years IUI with injectables x 4 BFN endometriosis surgery BFP March 2007 with IUI, m/c at 8w2d:( 2 more IUI, BFN IVF 1 and 2 BFN FET 1 BFN discovered I was a Type I diabetic (WTF?) started insulin failed adoption of Baby Boy May 2009 (mom changed her mind via Text Message) back to the clinic IUI #7 BFP, Baby boy E born at 37w via induction (placental abruption)July 18, 2010 8lbs4oz doing great! took a break to breastfeed until 2012 (only part of this that ever came easy for me) TTC #2 January 2013 IUI 1B, 2B, 3B BFN IVF #1B BFP but slow and low betas, m/c one twin 6w, lost the other one at 9w FET #1B Feb 19, 2014 transferred last two embies. BFP - praying this one works out because I think we are done with ART otherwise.

#18 Aiti

Aiti
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  • Gender:Male
  • Dx:Unexplained

Posted 20 February 2017 - 06:34 AM

Hi Janice-Trying,

You've had such a long wait just to get in for a consult -- I'm glad you have some answers. I am sorry about your m/c and admire you for taking the next step forward.

I have had lap surgery to remove a big cyst and found it a quick recovery -- not the same thing but still. I think I was up washing dishes (groan) by the next morning (sometimes quick recovery is NOT a good thing...) I guess then they would more definitively be able to tell you what has caused your tubal problems. It sounds like they are pretty certain that this is what caused your m/c so I guess they are hesitating to recommend an IUI for this reason, since you might get pregnant again and face the same thing.

I'd make sure they do all the tests they need to do before IVF and make sure everything is up-to-date, like HSG/hysterscopy, hormone levels, etc. (Like if your HSG was a while ago, then they might wish to update, because things can change.) Some sites recommend hysterscopy over HSG because it allows a more detailed look at the uterine cavity, but I think that's just some docs' opinions, since HSG seems to be the standard test. Have they done a recent HSG/hysterscopy to check about whether your right tube is blocked and for any new uterine issues?

I'd ask your RE and I'd also ask the on-site RE's for any suggestions they might have -- sometimes, different RE's have different recommendations (although there's only so much they can do without actually examining you, it is still quite helpful.) I'd also want to know about if there's any substantial risks, etc.

If you think traditional Chinese Medicine and nutrition therapy might be helpful, I'd also ask the experts here about any recommendations they might have, even if it's for suggestions re: what might help you recover more quickly. (I'm not sure about what they might suggest but perhaps it can't hurt.)

Hope you feel good about whichever next step you choose to take and that it leads to a nice healthy pregnancy for you.

Best wishes and luck flow.gif

Best of luck go for chinese medication they are awesome. I am azoospermia patient and I am also taking chinese medication from zhongba hospital which is a chinese hospital.

Age: 26 and TTC:2 years
IVF clinic: Bawaseer Ka Ilaj

Married since: 4 years
Azoospermia